Monday, April 25, 2011

Hang in there!

What spawned this title was a moment I had today while driving home.  The sun was shining, I had just finished a call home letting Andrew know I was close to home and I had this...happy feeling.

Here was driving, not something I did until my 30's.  In a car I own.  Headed up a hill to a nice community to my husband and my family.  WOW.  When did this happen? 1999 and onwards I suppose.

I then thought about how I felt when I first moved to Calgary.  Scared, 22 years old, single mom of a 17 month old and so very poor.  It was stressful moving here, but I had the support of my best friend from grade 7 and her family to support me.  They took me and Hilary in and provided us with love, food, a roof and encouragement.  When I moved out of their house, I took all that with me, plus household supplies. I never could of made it without them.

I struggled as the year went by out here, I wanted to go home every month. I kept making the plan to buy a ticket with my final paycheque and leave everything and all bills behind and run home to my mommy.  I held strong as I wanted so badly to make it to one year in Calgary by myself, July 7, 1998 would be the day I could move home.   During that summer, I met Andrew online and we went on our first date on July 7, 1998. I then forgot I wanted to go home to my mom.  He made me feel like an adult and became my new support system.  He became everything I was missing in my life.  With Hilary and Andrew, not to mention my career, I was complete!

After dating for 10 months, I got pregnant with Quinn.  I knew Andrew was the "the one" and we got married. Fast forward 11 years, Hilary is now 15 yrs old and has a life and job of her own.  Quinn is 11 yrs old, has Aspergers and ADHD, but does pretty good.  I am driving home from work on a sunny spring day realizing how far I have come.

I wish I could have my 22 yr old self come to the future and see what we have accomplished.  We struggle financially from time to time, but that is because we can't manage our money and love instant gratification, but overall, life is GOOD!  I am just so blessed!

Dear 22 yr old self,

I know it seems hard right now, and you are scared that you are making the wrong decisions, but you aren't.  Stay strong, and you will be rewarded with the life of your dreams.  By the way, put away the nachos and start walking everyday....oh, and buy some Microsoft stock.

Love your 36 yr old self.
ps. you are awesomesauce! You have a job at WestJet, how cool is that?

Thursday, April 21, 2011

143 days

I have discussed in the past doing a walk/run for charity and as motivation for me to move my ass.  I had been tossing around the Ronald McDonald and Allies for Autism walks.  Then I learned of the Autism Speaks in Edmonton Sept 11th.  I often visit that site and participate in discussion with them.  I am familiar with them.  So, when I saw they were doing a walk to raise awareness and funding, I talked to the fam and we all agreed on that race.  It works with my scheduling and we have decided to really enjoy that weekend.

We will head up on Sept 10th and spend the day and night at West Edmonton Mall, then Sunday the 11th, we will do the walk.  Now, its only a 3k walk, but its the training to get there I am most excited about.  I have 143 days to prepare.

Now, I have been having some issues with my back after a fall in the parking lot at work.  I had just gotten over my sciatic flaring up and being really bad when the fall happened, and that is what has made this a bit worse.  However, I am seeking treatments and hoping to get on track soon.  I am confident my back/hip issues are only temporary.  I am also sure that if I can start working out and stretching, it will then work on prevention of these issues. My current snapshot of health isn't helping the situation.  So, I need to help me first!  

My friend Kate started using this website called  Map My Run - You can enter your food and exercise logs so I joined too. Its really cool.  It has coordinating apps for blackberries or iPhones.  I put in all my info and worked out what my calorie intake should be.  Then I log in the food I have eaten and it calculates where I am with my calorie intake. It will tell you how many calories you have left to consume, and if you have had too much fat in your meals.  You can log your workouts, runs, walks, and biking.  You can enter this stuff manually or you can use the apps to track and upload. Either way! Its so cool! Its all free too!  I am anxious to get healthy to start using this site. I think it has a lot to offer.

I think this site will help me stay focused on the walk I have in 143 days.  I have been on the internet a lot since I have been couch bound with heating and icing. Because of that, I was able to research the walk to do, we worked out a team name, and this walk/run site.  

I asked all our friends to suggest team name for our family and my mom came up with The Asperger Avengers.  Instantly, it felt right for us.  Quinn changed it to The Aspie Avengers.  We decided being Avengers, we will wear costumes!  My friend Jesse will help me make the costumes, which is so generous!  Thank you Jesse!

It is time to get ready for my Dr. appt, its number one of 3 today!  I will keep you posted.

Whoa..I almost forgot the link to donate to our walk for Autism!


Wednesday, April 6, 2011

I am FRUSTRATED with Autism!!

I just sent this email off to Society for Treatment of Autism:


Hi There,

My son was diagnosed with Aspergers and ADHD when he was 8.  He is now 11 and we are no further ahead than we were 3 yrs ago.  We were told his diagnosis and left to fend for ourselves. As I follow link, after link, after link, I am getting frustrated and overwhelmed.

Why can’t it be simple?  Why can’t it be like this:  1. Diagnoses 2. Here is where you get funding 3. Now get the help you need ie: social classes, OT, Speech

So far I have been stuck on 2 so we haven’t advanced to 3.  A friend pointed us to FSCD and we just got the forms in the mail so I am filling those out.  My son goes to JR High next year and I am terrified.  Can you help me?

Sincerely,
Jody McKay

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Everything that I know what I am suppose to do comes from word of mouth from other parents.  It shouldn't be this difficult. I start out typing Aspergers, Calgary into a search engine.  A few links come up and they all talk about Aspergers and what the challenges are but none of them actually help.  

I don't know how to get funding to pay for what my son needs. I can't believe all money for Autism/Aspergers is split up between 20 friggin organizations, and I have to figure out how to get money to pay for Occupational  Therapy, Social classes and Speech.  

This needs to be mainstreamed, and Psychologists and the Government need to speak to each other.  The Gov needs to create a hand out for Dr.s so that way they can truly help us.  Once we were told our son has Aspergers and ADHD, we should've been handed a folder with  steps inside.

1. Call this number or visit this website and start receiving funding.
or to make it simple, OT, Social Classes and Speech should be free - call this number to get appts. Then I don't need to go thru the bullshit of finding funding.

2. Since free won't happen, list where I can get help.  

When you spend 2 hrs going from website to website and clicking link after link, hoping for the "magical" link (click here to get funding), it gets way overwhelming and you begin to feel like a failure. DUMB.  

Then you sit down at lunch with some co-workers and you find out there kid is half the age of your kid and doesn't even have a diagnoses per se, but they have funding and their kids are getting all stuff your kid needs.  You feel like a frigging moron and a failure.  Then anger sets in.  How is that someone figured this stuff out and I haven't? No diagnoses, and they get everything.  My kid is older and has nothing. WHY?

I met with a friend yesterday whose son is 13 yrs old and they have been pay out of their pocket all the expenses.  I asked why they didn't have funding, and then it was like me talking. "I have looked and I can't figure it out.  I don't know where to go".  I felt sad but inside, happy that I wasn't the only moron.  We shared our feelings of how we felt stupid and frustrated and for once....it was nice to know, I wasn't alone.  This isn't OK for us to feel that way. Something needs to change.

Now, a dear friend had pointed me in the direction of FSCD for residents of Alberta, to get funding and help. I think so far this is the best lead I have been given.  She is also the one who directed me to STA (Society of Treatment for Autism) and the recipient of the email above.  So, if you are in Alberta the following link will be of help  Government of Alberta

If you can help me find the way to dealing with this, please leave me a msg.


Friday, April 1, 2011

My son has Aspergers and it makes me sad.

So, tomorrow is World Autism Awareness Day.  My son Quinn has Aspergers, a spectrum of Autism. He also has ADHD.  There is an app on facebook where you can post a blue light. As the logo goes, Light it up Blue.  Andrew and I asked several of our friends who know Quinn to post that badge and wear blue tomorrow to support Autism.  As I seen in my feed the badges being posted, it brought a tear to my eye.  To see that people we love and care about, show us the same. To show, that it matters to them also just overwhelmed me.  My son has Aspergers and sometimes it just makes me cry.

It took me a long time to feel anything about it. When we found out, it was like a switch went off! We were like "Aha!".  Too bad it took until he was 8 years old to figure that one out.  Life has been "easier" since we found out.  I don't mean its easy for him or us, just that now, we know why.

As soon as we found out why, everything came together. Why he shuts down. Why he doesn't remember things. Why being in a large group is a problem.  Why music makes him freak out.  Why we can't have any food scrapings in the sink.  Why he gets upset when styrofoam rubs together.  Why he invades personal space.  Why he doesn't understand my angry face. Why he doesn't eat when we travel.  WHY WHY WHY. Because, he has Aspergers.

Most of the time, it is like he is normal.  Then, we get the call from the school about "incidents".  Where, he shuts down or uses violence to deal with a situation.  He is not like that child on the show "Parenthood".  Quinn is a happy go lucky kid.  Very social and loves to play with other kids.  Like most Aspies, he is into anything that evolves. I know way too much about Pokemon.

His friends in grade 6 right now are into grooming and how they look.  They text and like girls. Quinn, is equivelant to a kid in grade 4.  He wants to play, talk about Bakugan, and imaginary play.  Next year is Jr. High.  We have decided to mainstream him into the public system from his Art School Charter as they aren't meeting our needs.  I am terrified and worry about next year.  If it doesn't go well, it was my decision to mainstream him.  When, I think about how he will get teased and possibly bullied, it makes me cry.

I want him to be ok. I know in the end he will be. I have read countless stories of Aspies who have it all. I have read blogs by grown Aspies.  These all give me hope.

Tomorrow I will wear blue to support Autism Awareness Day. I hope you will too.  Thank you to so many of you who support me and my family.